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Wednesday, June 11
David turned 40
on May 22 with a party at Rainbow Bridge AND at our parent's house in
Afton. Here is David's report.
The Big 4-0
I just passed a milestone!! Turning forty was a milestone that was pretty
cool. I went to Park Street for a dinner and birthday celebration. Heinz
Krumpt sponsored the event. At least twenty people were there. I had a
seafood chowder and sandwiches and then I blew out the candles. Three
cakes!!!
Later, Evan Cooper and Sarah
went to Round Top to join a group of fifteen people for Jumbalaya on the
patio. Then we moved inside to listen to music. The music was really good
and everyone had a fabulous time.
Being forty isn't going to
keep me down. Next month I am hopping a train to Baltimore to visit with
Capes at his house. Molly & John Spillman and Cindy Lewis will be
there too.
We'll go out to eat and catch
up. I'm looking for a ride to Rehobeth Beach. I plan to go down for a
weekend to catch some rays and waves. Then, in August, I am going to Nantucket
with Brian O. It should be a great summer!
Smot
Thursday, November 15
Here is David's
version of his recent trip to Miami, as dictated to Patty. Anyone have
photos that are safe to share?
Florida Days with
the "Crew"
November, 2007
November, 2007 will
be a memorable one as it included a most memorable trip. It all started
with a fast & furious ride (just teasing Dad)to the Richmond airport.
Dad took me to meet the plane and I took off to sunny Florida for a Denison
Reunion on the Atlantic beaches. MIAMI!!!!! It might not ever be the same.
Brian O'Callahan made
arrangements for us to stay in his house. Matt Baum, Mark Guthrie, Steve
Gurley,Ted Andel and Jeff Capels, and Chris Thomas were all there. We
had to wait two hours for a van to take us to the condo. But we made it.
We laid low Thursday night and Friday morning we went to the pool and
caught some rays and swam. We showered and went out to dinner right around
the block. It took me fifteen minutes to find the place-everyone was waiting.
I had soup, salad, and lobster. Good food!!
Afterwards, we went
to the bar and danced, played pool and shuffleboard and darts. Seven girls
showed up. Oh gosh--too bad! We had a blast!
Saturday we were a
little slow getting going. I went to the pool and swam laps while some
of the guys went to play golf. Matt Baum and Mark Guthrie played tennis
and Steve and Mark and Matt kayaked too. We said our goodbyes at the pool
and then showered and left for Miami which was 15 minutes away. I flew
back Saturday night and was picked up by Heinz and one of the Bridge members.
We listened to the Miami/UVA football game all the way home. 48 to nothin!!!
I had a good time
and a great trip.
SMOT
Saturday, October 13, 2007
Here is David's
own report from his San Fran trip!
Last week I took a
great trip! I went to San Francisco to see Mike Putnam and his wife AND
Dr. Manley. Here are some of the highlights:
I arrived Thursday and Mike picked me up. We went right across the street
and had dinner. After dinner, we went home to Mike's house and I met his
new wife. Great gal! I went right to bed after that--it had been a long
day.
Friday morning, Mike went to work at 4:00 am!!! I slept in and when I
awoke, I waited for Deed Whitney who picked me up. Deed and I went to
the ICU at the hospital. Dr. Manley was waiting for us, and we sat down
and talked a little while. Dr. Manley had his laptop computer, and he
looked at two of my Cat Scans. The first Cat Scan was from the time of
my accident. The second Cat Scan had been completed in July of 2007. Dr.
Manley said that he was "blown away" (his most professional
vocabulary!) because there was evidence that the brain was reattached!!
LOOK OUT WORLD, HERE I COME! Joan Goldberg was my nurse at the time of
the accident, and she is still working at the hospital. She too was "blown
away"! Dr. Manley said that the prognosis was good for me and he
told me to keep on improving. He wanted me to keep reading and answering
questions about the reading. He also wanted me to keep reading Sports
Illustrated,too. Dr. Manley said that another patient of his who had a
similar accident had improved her speech by reading books. I plan to do
the same thing. He said that would be great. I felt good about the whole
visit at the hospital. I will be returning to San Francisco again for
another check up, but I don't know when right now.
After the hospital
visit, Deed and I went to Homzee's (sp) workplace. Homzee, Deed and Mike
Putnam and I went upstairs and watched the Jets' practice. Then, Friday
night,we went to an informal Denison ReUnion with about 20 guys. What
a blast! It was great to see everyone.
Saturday morning,
I went out to brunch with Mike and his wife. I then packed up all of my
thjings and Puts and his wife and I went to Home's crib. Lazy guy--sleeping
in late... After a brief visit, we went over the San Francisco Bay Bridge
to Sausilito and we had a nice drive. Puts and his wife went out on a
boat in the Bay. I tagged along and met one of their friends. Good guy.
We had a nice time. Then, Saturday night, Weate hotdogs and hamburgers
and watched the Rockies' game.
Sunday, it was time
to pack up and fly home. Mike and his wife went home and Tuts and I went
to the airport. It was a long flight home and I had a layover in Cleveland.
Mom and Dad picked me up at the airport. Good to be home--back at those
books!!!
SMOT
Tuesday, October 9, 2007
David just returned
from a great trip to San Francisco. Friends, friends and more friends.
Plus a trip to the old ICU... This report from Mom:
Heres the scene:
Six and a half years after being wheeled out of San Francisco Generals
Intensive Care Unit to the waiting plane which would take Bob and Dave
to Denver for rehab, David was back. This time, though, a big smile lit
his face and he was walking independently.
Deed Whitney, a friend
from way back tells the story. They went first to the research center
in front of SFGH where they were to meet Dr. Geoff Manley. Dr. Manley
looked up, saw David, and was just blown away.
David had been back
for a visit about four years ago, using a wheel chair if he had to go
far and a hemi-walker for shorter distances. The entire San Francisco
medical team who saved his life after the fall that pulverized the left
side of his brain were used to seeing him long but prone. They are still
surprised by his height
and that he sits, stands, walks. And they
havent even seen him working out in the pool, swimming laps for
45 minutes.
Doctor Manley
took us into his research area and showed us one of the most state of
the art machines. It is used for imaging and pathways and shows precisely
what lights up when any part of the brain is used. For instance,
Manley told him that David basically has no temporal lobe. Thats
where the centers of speech and understanding are located. But, and he
couldnt stop looking at David, What is obvious is that Davids
brain is reorganizing to store speech somewhere else. He hopes to have
Dave back for some testing. This machine could pinpoint just where his
new speech center is. Maybe it would even show what process his brain
goes through to understand, find words and then project them.
Dave, of course, is
all up for becoming a guinea pig. Hell fly to San Francisco any
time. When they went over to the ICU, Manley glanced into the ICU waiting
room. Friends and family all remember that place where we spent two months.
Deed said that it was like walking into a movie. The sadness, the fear,
the friendships all came back to him. The surgeon motioned Dave over and
said that there was someone he wanted him to meet. This womans husband
had suffered a heart attack and fallen, causing a traumatic brain injury.
It didnt look good for him.
David has always had
a heart and hes not afraid of pain. His natural empathy has become
fine tuned through his own struggles to create a new life. Deed said that
as Manley told Davids story and David added his own bits, he could
see hope reborn in the woman's face. David says he would like to find
a way to help Dr. Manley teach people about Traumatic Brain Injury. Any
ideas out there?
David radiates a joy
of living, most especially when he is surrounded by friends, invited to
rejoin the world he lost for a weekend, a few days.He IS creating a new
life but the old friends will never be replaced. Mike Putnam and his wife
got home from their wedding and honeymoon on Monday and picked Dave up
at the airport on Thursday. Putnam and Andy Tuthill planned the weekend
to include dinner out, two nights at Putnams and a night at Tuthills
(Jenny adapts well to these visits from Dave which always turn family
life upside down). There was a cookout at the Tuthills new Marin
county home, friends with children (many new additions since the 2001
ICU days), sailboating. Neil and Ellie Gibbs brought their two kids; Matt
Holmes and his wife and baby came; my cousin Jennifer Terwilliger drove
down. These were the names that spilled out of him on the drive back to
Charlottesville from Richmond. I know there are more.
David flew home last
night. He cant quite skip with that brace on his right foot, but
his walk was energized. Whew, Dave, you must be tired. Hed
been flying or socializing for four days. That grin split his face, Nope,
good to go. Great weekend.
The happiest moment
of the hospital visit came in the ICU when Joan Goldburg and David met
once again. Good woman, he said, good nurse, funny,
sarcastic. Bob and I had seen her when we were out in San Francisco
for a wedding two years ago. Shed taken time off from work and was
fighting a winning battle with cancer. David asked her how the chemo went
and how she was feeling. Victorious, of course. Winners recognize each
other.
All of this takes
me straight back to those days, those terrifying, heart freezing, heart
warming days and nights of wonderful people who cared for our son and
took care of us, who fed us and cried with us and laughed with us, explained
blinking, binging machines to Bob, told me of each miraculous reaction
David made. Sometimes its good to revisit that time when our hearts
were all focused and we lived on love and hope and other people's energy.
Its good to see the Dave of today and know that hes still
bringing people he loves together.
We thank all of you
who keep coming through for him and enjoying who he is today.
With a heart full
of happiness.
Johanna
PS--Dave will be in
Florida for Christmas with Jay and Kristen and baby Emme...and Bob and
me. In January he heads to Bomber's in Jackson Hole...He's the travelin'
man.
Sunday, July 1, 2007
David
had a great time seeing friends in Baltimore and going to see the NCAA
lacrosse Final Four last month. If anyone has photos from the weekend,
please send them along! Here is David's report:
Trip to Baltimore
: May 25 & 26th over Memorial Day Weekend. What a weekend! Saturday
morning I left Charlottesville on a train bound for Baltimore. I arrived
around 11:00am because the train was delayed for an hour. Jeff Caples
picked me up at the station and we went directly to the Final Four games!
We stayed for two games and then went to Jeff's home and had some pizza
and chicken wings. Christina was a great hostess. It was a great way
to start the weekend.
Sunday had Division
III games and Mark Guthrie took me to the game. Steve Gurley went with
us and Mark and I had a bet on the game. Mark won $5.00 due to the undefeated
season in the Division III. Steve was smart enough not to bet!! After
the game, we went to see Hardy & Hillary Manges who prepared a big
cookout dinner for everyone. Great time!!
Monday, I packed
my bag and John and Molly Spilman picked me up and we went with their
two children to the game. Molly and the children left the game after
the first half. John and I stayed for the second half and watched Johns
Hopkins beat Duke by one goal. No bets on this game! John took me to
the train station after the game and I was "going to Charlottesville!"
Thank you to everyone
for such a wonderful time! You are all great friends!
SMOT
Monday, June 18, 2007
David
and his tutor Pattie have been working on David's writing skills. He has
written a brief description of his trip to Colorado last month, and then
he emailed it to me to post here. Stay tuned for a report on the NCAA
lacrosse finals as well!
Four Days
in Colorado
By
SMOTTY
Thursday, May 10,
2007
Off to Colorado!!
I took a plane from Charlottesville at 1:00pm. I arrived in Charlotte,
North Carolina at 2:00pm. After a three hour layover, I was on my way
to Denver. Chris [Ebel] picked me up from the airport. On our way home,
we made a pitstop--The Rockies & Giants were playing--we came in
at the 6th inning, no matter, the Rockies won!!
Next it was on to
see Guy Arnold, Liz and the two girls. Friday morning, the girls and
I ate breakfast together. Liz and Guy left early in the morning for
work--never a dull moment. Later, my friend Richard Hals took me to
the athletic club for lunch. What a beautiful place! Fifteen people
posed for a picture at lunch. That will be a keeper, for sure.
Friday wasn't over
yet! Guy and I went to another Rockies game at night. We stayed until
the end. The Giants won--bummer....
Saturday morning,
we had another special game to attend. The girls had a soccer game.
It ended with a 1:1 score--exciting game!! In the afternoon I rested
for two hours. Then Sullivan, his wife and Finn and Max came to dinner.
And a third is on the way!! Fabulous dinner--the best of company!!
Sunday, Guy and
I went to the airport. My trip was ended too soon. Guy and I hugged
and then it was time to go to Charlottesville. Thanks to everyone for
a great time!!
Love, SMOT
Saturday, February 17, 2007
Things
have been very busy in the Smethurst family! David is an uncle once again!
Jay and Kristen gave birth to a little girl, Emme, on December 5, 2006.
Things are almost getting under control again in Florida. Dave had a great
Christmas trip to Colorado, spending time with Kathy, Brooke, Molly and
Jack, and jetting off to Denver, Boulder and Aspen to visit buddies. (Anyone
have a report to share?)
David
is trying to stay warm in Charlottesville this winter. He has season tickets
to UVa hoops games, and he seems to have particularly enjoyed the recent
win over Duke. He continues his therapies as well. Below is an update
from his therapist Pattie:
I just wanted to give you
an update on his progress. I am feeling very good about it, and I hope
he is too. We have continued to work on fluency when reading, and I
am beginning to see some progress in his ability to read with adequate
speed and understanding although the passages use only limited vocabulary
at this time. I will continue to increase the difficulty as we go along.
We read the Daily Progress occasionally to make things interesting and
David does well although he can get tired easily with the task due to
print size and vocabulary.
In addition to the reading,
David is completing questions about passages on his own. We then review
them together. He is consistently earning a score of 80% when answering
the questions, and he only needs support on one or two of the problems.
This work includes multiple meanings work, definitions, use in a sentence
as well as the comprehension questions. All of this helps to keep things
a bit more interesting.
We have also continued to
review the individual sounds and letter names so that these are overlearned
and that David can then use this information when writing. I have seen
improvement in this area and I am so pleased. I continued to cue
David with the appropriate questions in order to write the correct letters
in a spelling sequence, but he is more and more able to correctly identify
the letter that makes the sound and then to write that letter. I am
hopeful that these skills will remain consistent and that we can move
along with the writing and spelling skills. We are completing the computer
today and we will use these skills when writing emails. We only do computer
every several weeks. I ask David if he wants to work on the computer
and I just follow his lead.
Friday, November 24, 2006
It has
been a very long time since the last update. This is due to my (Jay's)
irresponsibility, and I apologize. Dave has been doing quite well in the
interim. He spent a great week in Rehoboth with the family (including
a number of our cousins!) and got to see some college and Rehoboth friends
as well. (I have some photos from their dinner, which I still need to
post.
Meanwhile,
Dad just sent me some notes from David's new reading tutor. They're using
your emails as part of his reading and writing practice. Moreover, he
loves hearing from everyone, so keep sending your messages! Here's Dad's
note:
I am
sending along some excerps from two emails from Pattie
Watson, his new language tutor. Karen Fleetwood moved to Georgia, but
she
found us a wonderful replacement in Pattie. Dave seems to like her a lot,
and from the messages (and one observation session) we think she is adding
some new dimensions to his work and to his improvement.
From her work in September:
I cant believe it is already October! David and I have continued
to
move along. We have started emailing some of his friends and although
it
is somewhat challenging, I think youre correct that it is wonderful
for
him to be in touch with friends. We use the email to practice writing
and
I think he is making good progress. He has returned several emails and
well continue to work on the computer for at least one time a week
during
our times together.
We also continue
to work on reading and language arts skills. I have
given him some reading comprehension work and I have continued with the
re-reading process for fluency and comprehension. I have given David some
work with compound wordsthis way he has more tools for
decoding. He
has done quite well with the work. I think his solid education only helps
with the recollection of these areas of instruction.
We have also done
some work with grammarin particular with using
pronouns or nouns as the subject of a sentence. David is working to
remember to include a noun or pronoun at the beginning of a sentence.
We
also practice making the complete verbal response to a question.
Well
continue with this work. I hope that it will begin to cross over more
into his conversational speech and allow David to remember more of each
sentence he wants to speak.
From her work in October:
I am enjoying the time with David and he is doing so well. We have
continued much of what we started in September, and we have been sending
emails to some of his friends as you requested. I know we sent you one
requesting those Christmas tickets to Colorado!! We use this email time
to help with Davids encoding skills too. At times, he gets mentally
fatigued by the work, but he is making some progress and I am pleased
with
it.
We have also worked on the grammar of subjects and predicates.
I am
trying to improve his ability to give a subject when he is speaking. It
remains difficult for him, but I think the exercises have been important.
We are also completing comprehension and fluency with the reading
exercises. Although it differs from day to day, I feel his is improving.
David is completing work every session in multi-syllable words. This has
improved his confidence when he comes across larger words. We continue
to
work on the sounds tooI dont want him forgetting what he has
learned!!
The Tuthills were
quite impressed with the improvements they saw (and
heard) in David during the recent birthday weekend with the O'Callaghans.
It would be great to get some direct responses from them, but they are
busy people and did us a great favor by housing Dave for that suprise
party. He had a absolutely great time all weekend and earned the label
"the dancing fool" from his Saturday night efforts.
e now heads to Colorado for Christmas and will be in the Frisco, Aspen,
Manitou area from Dec. 20 to Jan. 3. If people want to connect, have them
call Kathy.
Wednesday, August 2, 2006
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Dave
is doing well: still going on Wednesdays to Evan and Cassandra Cooper's
house (the Pickin' Shack) to hear music: blue grass, country, with
Celtic overtones. Though he's still not driving, they live close
enough to his downtown Charlottesville home that he can walk over.
The whole group came to our house in the foothills of the Blue Ridge
a couple of weeks ago and played out on the deck. The music's good:
a couple of fiddles, a base, a couple of guitars, a couple of banjoes...and
singing. When Dave knew the words, he joined in full voice. When
he didn't, he just
listened and kept time with his knee. I joined in with the YEEEHAAAWs,
allowable out here in the country where there's nobody to bother
but the tree frogs.
Next week is
the Smethurst Family Reunion: Dave, Kathy and Brooke, Molly and
Jack, Jay and Kristen and the Friendly Fetus, Bob and I as well
as all the cousins and aunts and uncles who will make the trip.
Dave, Bob and I arrive Wednesday Aug 9th in Rehoboth Beach, Delaware,
and leave Tuesday the 15th. A fine bonus is that there is also a
Denison/ Summer Beachworker reunion of all the friends who worked
their college summers in Rehoboth. Believe me when I say Smot is
psyched.
Not that that
one trip is enough for him. A few weeks ago he called with very
specific requests: "Get train tickets for Baltimore--going
Friday August 25, coming back on Sunday the 27th."
"Oh, great,"
I said, already laying a false premise, "who invited you?"
"Uh....I'm
staying at the Gurleys'."
So I called
Lynn and Steve and left a message to find out what time of day
I should make the Friday reservations. They were out of town and
didn't get back to me. A couple of weeks passed. Dave called, "Mom.
The train tickets?" "Oops, I haven't gotten them yet."
"Get early morning tickets on Friday." "Oh, good,
that time of day works for them?"
So, as I was
on the way to the train station in Cville I called Steve and
Lynn again: "OK, I'm on my way to buy the tickets. I'm getting
early morning tickets for Friday Aug 25. This is your last chance
to tell me it's bad timing."
I bought the
tickets. My cell phone rang an hour later. Lynn said she was sorry
they hadn't gotten back to me. They were excited about Dave's visit...but
in fact...my call was THE FIRST THEY HAD HEARD OF HIS VISIT.
I think that
even traumatic brain injuries can't change some people. He used
to do this to them regularly? "HEY, I'm in town. Got a couple
guys in tow. We'll be there in an hour." The Gurleys have the
gift of welcome and they always welcomed.
They were no
different this time, BUT....their house is in the midst of
reconstruction making a minor hell for them and no room for anyone
else to
sleep. "But we're free. We'd love to have him around and to
entertain him. Steve will call Hardy Manges....." So that's
how it's working out. Friends to the rescue. Friends with open arms.
And Dave with another trip planned. He's a trip loving man who thrives
on his friends.
There's a new
way to get in contact with him - email! At present it's too
complicated for him to handle alone. The method set up for getting
on line
requires him to jump through hoops with flashing ads and a multitude
of
passwords and waaayyyy too much stuff. When someone with a simplifying
mind enters the picture, it will help. In the meantime, though,
DO write to Dave at his new email address. Chris Ebel, in Boulder,
sent him a computer and it's finally set up. About once a week,
someone will go on line with him to help out with reading and responding...so
don't hope for immediate response.
This should
be a new venue for David, though, to connect with friends and
to practice his slowly improving reading skills. Writing is harder,
but
this is a great incentive and something he has wanted for a long
time. Please, though, do not forward him jokes, links, etc. -- just
personal messages and updates.
One good recommendation
from Karen Fleetwood, who has been his reading tutor for the past
three years, is that you write in a larger font. A
14-point font like this should be good. Exciting, huh?
smoothsmethurst@yahoo.com
He really looks
forward to hearing from you...and to seeing many of you at
the beach next week. Kathy and Jay, Bob and I do too
Johanna
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Photos
from Pickin' Shack's First Concert
Fall 2005

David and
his dashing brother Jay

David is his
dashinger sister-in-law Kristen

The Pickin'
Shack Boys

Their Biggest
Fan

Pres Nowlin
& Ted Davies,
Woodfairies

That's Evan
Cooper on the right. He plays a mean guitar.

He sings,
too. That's Galen on the left.

Ok, ok, they
all sing eventually.

Scotty G.
hangin in the back. Yes, that IS Dave Matthews' guitar. Thanks
for asking.

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Saturday, June 10, 2006
Dave's
been a busy man these last few months. I've got a few updates to give
you -- his great fishing trip, his visit to me in Florida, and of course
the thrill of watching the UVa lacrosse team finish its perfect season
with the NCAA Championship. More importantly for some of you, Dave's heading
back to Rehoboth around August 10-15, so put it on your calendars! See?
Lots going on. Let's start with his fishing trip.
In late
April, Kevin Kane (one of Dave's friends from Obie's-by-the-Sea in Rehoboth)
rented a 20-foot boat and took David on a fishin' trip. Here's Mom's brief
report:
The captain, Kevin and Dave
were the only fishermen. I take it that Kevin is a serious fisherman.
Where they were it was sports fishing: you catch, pose for the camera,
and set it free. Kevin rigged up an affair with a lax stick that somehow
helped one armed Dave bring them in.




Click on the images
above to see a larger version.
Monday, March 6, 2006
Sorry
this is a little late, but here is the most recent update of Dave on skis!
Good
Morning America!
David was back on skis yesterday. He made three runs, beaming and happy.
Big thanks go to Neill and Christine Redfern for encouraging him to give
it a try. They looked into adaptive skiing when he visited them in
SteamBoat Springs last fall. He has talked about it a lot, and so Chris
and Patricia looked into it, found an adaptive ski program at nearby
Massanutten and a highly experienced instructor, Mark Andrews, to help
out.
When Patricia looked
up and saw Dave skiing down the mountain, she started
to cry. After waiting rather nervously at home all day, I called to hear
how it had gone. When I heard, I started to cry, too. WOW. After hearing
that Smotty took no falls on the slopes and skied like a skier, I wanted
details. Chris filled me in.
Until he was evaluated,
David didn't know whether he'd be "skiing" seated
on a chair/snowmobile type thing, enclosed, protected by two aids or
somewhat more on his own. In fact, he was upright and skiing. Mark skied
behind him with Dave on a sort of tether around his waist so that he
couldn't get out of control. Since he has no use of his right arm, his
left hand pole had what Chris called "an out-rigger", another
small ski
attached to its bottom to offer more balance if needed. There was some
sort of attachment to the front of the skis so that they couldn't suddenly
splay. Otherwise, David was on his own to choose decent and balance, etc.
At one point another skier veered towards them and Dave swerved, almost
lost his balance, and then regained it with no fall.
Mark told Chris that
he'd really enjoyed skiing with Dave. "He was
obviously a fine skier before the accident."
I talked to David
last night and asked if he'd been at all scared at the
start of the first run. "No....wellllll...I said, "Go with the
flow." So
what's changed in his life?
(Kathy asked about
how David's leg brace fit in the boot, and whether they had trouble finding
an appropriate helmet.)
The adaptive ski program
provided helmets, and they did have one big enough. Apparantly when he
fell (skis off) on the way to the lodge, landing on his butt isn't what
hurt. The fall caused the helmet to bump his head...and that likely ended
his skiing for the day. Chris said he thought Dave had probably had about
enough anyway. The right boot was interesting. I asked him that today.
The reason for the brace is to keep his foot from flopping down. A ski
boot, being rigid, serves the same purpose, so he didn't need the brace.
Taa Daaa!
Love to you all,
Mom
Wednesday, February 1, 2006
Over the last few years, David has been working
very closely with Karen Fleetwood on his reading skills. They have used
an approach called Direct Instruction, and we have seen tremendous improvement
in David. Here is a brief compilation of several of Karen's reports over
the last year or so.
[2/1/05] "Dave is doing just great. We
are reading strictly out of short
readers. I tried a couple of different books at different levels to see
where his reading and stamina rate were when not in a lesson. He's reading
from third grade passages. Now that may not sound great, except for two
things: (1) where he is coming from. It is now almost hard for me to
imagine and remember where he was when we began - how hard it was to just
get sounds out and remember them from one day to the next. (2) The
majority (or close to it) of materials that most people read on a regular
basis - except for textbooks and material specific to a field - are
written at about a fourth grade level. Therefore, he's not out of the
realm of being able to read things he may come across on a daily basis.
What we're doing, and where he will be for some time to come, is reading
and re-reading. I found also that the longer the passage, even if at the
same level, makes it more difficult. The last one we did was a good
example. The previous passages I had used were about the same length,
but
broken into two parts and we would work on one part at a time. This one
was straight through. We kept goiong because on the first three
paragraphs, his error limit was very low - he was doing great. Then it
started slowing down as we hit the last long paragraph. He had more errors
just on that paragraph than on all the rest combined...."
[9/5/05] "Except
for the week Dave was gone, we've been back at a good
steady roll, and that helps a lot. The last couple of pieces we've read,
Dave has justy breezed through - that has been really great! I love seeing
this rate of progression moving! After this piece we're working on and
the
next one, I've pulled out a piece that is two full pages long - that will
be interesting. Keeping that focus going without wearing out is difficult,
so we'll se how it goes. And I am going to look at some other material
like the Sports Illustrated for kids you mentioned and similar
publications...
[10/4/05] ""Dave
finished his first full two page story last week. I'm
thrilled at how he did! We backed up a little bit and read it the first
time oer two days, instead of one, because of tme - it took a day to get
through each page. But then, it only took one re-reading (for error
correction) for ech paragraph, then we read each page, then the full two
pages in 20 minutes. I can really see tha light shining down the long
tunnel! It will still take awhile, but he will make great progress in
the
years to come."
[11/1/05] "We
do subscribe to junior Sports Illustrated here at school,
so I got an issue and we've been reading that the last couple weeks. It
certainly makes a difference when the subject matter is kfamiliar - not
unexpected - so I'll probably do a mix of reading something like that
and
then lsome more unfamiliar passages. I hope that will build up his overall
ability."
[1/12/06] "Dave
has done very nicely after coming back from Colorado.
He, of course, did have a great time. I did forget to ask him how the
trip went since he had to change planes - obviously he got there and back,
though! It's so nice to continually see these days that he is not losing
what he's learned when we have breaks - long or short. That is just so
great.
To work on multi-syllabic words (the main thing we need to work on now),
I'm using word lists, paragraph by paragraph, and going over them before
reading the paragraph. I'm spacing out the syllables when I write the
words (and I'm having to make sure there is a good amount of space between
them), so that he is forced to read part-by-part. And, as I think I've
mentioned before, if he hears himself read all the syllables, more than
9
out of 10 times, he is able to get the word almost immediately, or
sometimes by just reading the syllables over until it clicks. Yesterday
was an example of times when I have to "force" him to stick
to reading
each part. The word was "genetic" and I had written it in syllables
for
him: ge ne tic. I eventually had to put my finger over each part
because he wanted to keep blending the sounds into one syllable. He was
reading: gen tic. So I had to keep blocking each part so he would read
the syllables separately and hear them. That happens less often than it
used; sometimes I do have to physically block each part to keep him on
track, but more often he can do it himself or I might just point with
the
pen as he's reading. Then, of course, we go back and read the whole
paragraph. It's allowing him to read much more, more fluently than he
had
before."
All can see the progress
that Dave is making with Karen Fleetwood as his Direct Instruction therapist
both in terms of his level of reading and in terms of his expanding vocabulary.
Dave really likes her, we really appreciate what she has been doing for
over three years now, and we are all looking forward to 2006 with real
anticipation for more good things to come. Thank you Karen!
Sunday, January 15, 2006
5:00pm Eastern Time, 1/15/2006
Here is a new year's note from Kathy:
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Happy New Year to you all! As we
begin our plans for 2006, Jay, Mom, Dad and I have decided to up
our commitment level to Dave's website and update you once a month
instead of letting it go for 1/2 a year or more with no Dave news.
Our hopes are that Dave can get involved too as in 2006 we will
try and get him online like the rest of the world. Video updates
might make that possible since writing is still a challenge for
him.
While he was out visiting us for Christmas,
we spent a little time videoing him so that those of you that haven't
seen him since his accident can get a sense of who he is now....five
years later. He looks very much the same as his fall just damaged
his brain and didn't take away his good looks. The far away look
in his eye, that so many with brain injuries have, has gone away.
I attribute many alternative therapies to that. He has that
"connected" look now. His differences lie in his challenges with
speech and his inability to use his right arm. Dave's accident took
from him everything that meant the most to him....his precious sports:
golf, squash, and skiing....and his ability to banter the most hilarious
jokes and stories putting anyone he met immediately at ease. Spending
time with friends was how he passed every spare moment.
Dave's life has changed significantly
in the last five years since his accident and yet he remains positive
and continues to work hard at rebuilding his life. To me it's hard
to believe that five years have passed. My kids were just 2 and
4 when Dave fell and I remember being so overwhelmed with everything.
Balancing time spent with Dave in the ICU and rehab up in Denver,
with the hectic autism therapy schedule for Molly and the constant
needs of my 2 year old son Jack. Poor Brooke didn't get much of
me in those days but saw a lot of kid time as I ran around. What
a good guy. Now that the kids are 7 and 9, out of diapers, can feed
themselves, are at school all day 5 days a week, life around our
household is certainly less stressful. Pair that with the acceptance
of Dave's injury and knowing that he is in good hands in Charlottesville,
we are in a really good place in our lives. Why do I feel the need
to knock on wood?
As we begin the new year, we again look
to you to help fill Dave's calendar with some fun events to look
forward to. He loves his annual trip to Baltimore for a lacrosse
weekend, he's up for anyone joining him at our Rehoboth Beach house,
if you're in C'ville he loves to go out to dinner and a movie or
to any UVa sporting events. We all have busy lives with the chaos
of children and jobs so we understand that making time for an old
friend can be hard. So when you call Dave and connect, it means
even more to us (and to him).
I doubt that we can ever recreate the
love and energy that surrounded Dave through this website during
those first few weeks and months of his accident. But I must
say that I miss the bonding and close relationships that I developed
with so many of you at that time. I would love some pictures and
updates on your lives 5 years later too!
Love,
Kathy
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Wednesday, September 7, 2005
5:00pm Eastern Time, 9/7/2005
Hi everyone! We've got a couple of things to
report here, but let's start with a quick happy birthday to Dave's dad!
Yup, he's finally hit 60! (ok, not really) Dad has been working incredibly
hard to support David from day one of this experience. He has had to learn
about social services in California, Colorado and Virginia, he's figured
out at least a little bit about how Medicaid works (that alone deserves
a Nobel Prize, I think), he's found rehab programs, he's found a great
place for David to live, and he has silently put together a pretty good
life for David in the last few years. So on your birthday, Dad, I want
to say thank you from all of us. I have no idea how we would have handled
any of this without you.
The second announcement also involves Dad.
David is living in a home that is part of the Rainbow Bridges Foundation,
a local non-profit in Charlottesville that provides homes for brain injury
patients. Dad has agreed to become the head of the Board of the Rainbow
Bridges Foundation!
Now, this might have also led to some confusion
for folks recently. Dad's first task on the Board is to start a fund-raising
campaign for the foundation. Some of you might have already heard about
this, but the initial letters were only sent out to a small number of
people. Mom and Dad told David about this campaign in order to prepare
him for the task of writing thank-you notes.
Well, never one to sit by while a good cause
is going on, David himself has gotten on the phone and called a number
of his friends asking for contributions. Unfortunately, David is not working
from a script, and he does not actually have a lot of information about
this fundraiser, so while people have understood that he's asking for
money, not everyone has understood why.
This has dove-tailed rather unfortunately with
a campaign on the part of some of David's friends to raise money to support
David personally. These are two different efforts, both of which will
help David in different ways.
So, if you would like to make a contribution
to help David, here are your options (to the best of my understanding
-- which might change). If you are interested in a monthly electronic
transfer, please contact Dad to set it up. (540)456-6210.
Tax Deductible Donation
to the Rainbow Bridges Foundation
These donations ARE tax deductible and go into the general funds for the
Bridge Foundation. This helps to support David and the other residents
of this great organization. These donations will help fund some improvements
to the properties and the ongoing operations of the organization. Please
make checks payable to: The Bridge Fund.
The Bridge
PO Box 7292
Charlottesville, Va 22906
Non-Tax Deductible Donation
to Support David
These donations are NOT tax deductible, but will help David directly.
These donations will provide Dad with additional resources with which
to pay for therapies, medications, and some of David's travel expenses.
Make checks payable to: Robert Smethurst.
Robert Smethurst
9611 Critzers Shop
Road
Afton, VA 22920
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